Hi Everyone,
We received an email this evening from Peter's Pal Macie & our friends from Buffalo, New York.
For those of you who don't know them, we didn't know them either before Peter's adoption, we were total strangers. But we met while on our first visit trip with Peter and have become very good friends ever since. We have went on vacations with our family and theirs, and have had many fun times. We have kept in touch ever since. Their daughter has Epidermolysis Bullosa (EB for short), and there is a "RELAY-RALLY New York to California" - "WALK a MILE in MY SHOES" to help research for this skin condition. Macie is just a couple of weeks younger then Peter, and she has been dealing with EB from Birth.
Macie asked for our help in spreading the word. We have put a link on the right margin of this blog, so you can check it out and become aware of what EB is. On October 25th, they are starting the Rally in New York City. If you are not able to go, please check out their website and help with the Cyber Rally - you just need a computer for that.
Thanks so much, and Macie thanks you all Too!
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4 comments:
You are aboslutely AMAZING! The BEST.............
THANKS SO MUCH
Julie
THANK YOU FOR HELPING SPREAD THE WORD!!!
-Chris Matthai
EB RELAY/RALLY Coordinator
http://ebfriends.ning.com
hey, You Welcome Guys!
Hope to see you in NYC on the 25th of October.
Margaret & Peter :)
Thank you for helping to spread the word about our EB Relay and Rallies!
Gena
Event Organizer
www.ebrelay.org
"Compassion in Action!"
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